Kansainvälinen HAE-päivä 16.5.2012
On May 16 2012 hae day :-) aims to raise awareness of Hereditary Angioedema among the general public and medical community, with the aim of creating an environment in which there is better care, earlier and more accurate diagnosis and knowledge that HAE patients can lead a healthy life.
This event has been initiated by the HAEi, the International Patient Organization for C1 Inhibitor Deficiency, along with the support of its National Member Organizations. For more information about the HAEi, please visit http://www.haei.org.
Everyone is welcome to take part, your support will help us maximize the success of hae day :-).
We hope that by increasing awareness of HAE and it's symptoms, people who might be unknowingly living with HAE will seek help. We are also aiming to raise funds for our national member organizations to help them continue their vital work supporting HAE patients in their respective countries. hae day :-) intends to:
• Support better care and an earlier and more accurate diagnosis for HAE patients
• Engage the general public and the medical community
• Raise funds for further national and international initiatives
• Strengthen the voice of patients, uniting HAE patient organizations globally
Already now you can help us in a fun way to raise awareness of HAE by visiting our website and "Cover the World with Your Smiles". Upload your smile and a greeting on http://www.haeday.org/smile – your smile links to Facebook and Twitter – and you can also share your smile (together with a message) on your Facebook wall. Here you can ask all your friends to also send a smile. Who knows? Maybe somewhere out there in your Facebook network you may find an undiagnosed person with HAE.
Please spread the word and make some noise about http://www.haeday.org !
Viimeksi päivitetty (18.01.2012 13:45)